Welcome to Living With SMA

If you’re a parent / guardian, teenager or adult who has SMA, or a professional working with families or adults in the SMA Community, and you're wondering about an aspect of life with SMA, we hope this area of our website will be a helpful starting point giving you some useful information and ideas. Based on knowledge and advice from the SMA Community and SMA UK's Support Services Team, this is just the beginning. If you have tips, stories and photos to add, please do get in touch so that we can add and share your experiences.

Follow this link for the latest information we have about the coronavirus, including organisations that can help and support you, and tips and ideas for keeping entertained and positive if you’re having to socially-distance or isolate.