Online & Other Communities

If you’re interested in having contact with other people with SMA:

Adult Insight Group
This Facebook group gives adults the chance to share questions and experiences on any part of life. Any topic can be suggested by group members. The group also has regular video calls. SMA UK may also ask the group for views on a topic: 
www.smauk.org.uk/adult-insight-group-aig      

Young Adults (aged 18-25) Network
This is a network of volunteers willing to share their experiences. This can be limited to contact via email, but can include other face-to-face opportunities – whatever’s most comfortable: 
www.smauk.org.uk/young-adults-aged-18-25-network    

Other Online SMA Communities
These have been set up by people in the SMA Community:
www.smauk.org.uk/online-sma-communities    

Muscle Groups
MDUK has a network of local groups, known as Muscle Groups, that meet regularly across the UK. They offer the opportunity to meet others who also know what it’s like to live with a muscle-wasting condition:
www.musculardystrophyuk.org/get-the-right-care-and-support/local-muscle-groups/

Page last updated: July 2019