Resources For Parents

ACE Education – provide advice and information on education issues for children aged 5-16 years old in state education in England. 
Phone: 0300 0115 142 or visit: www.ace-ed.org.uk  

Contact for Families With Disabled Children – provide information and support to families who have a child with a disability, including information on education. 
Phone: 0808 808 3555 or visit: www.contact.org.uk  

Council for Disabled Children – work to influence Government policy, work with local agencies to put the policies into practice, and provide guidance to parents and carers on issues that affect disabled children, including what educational support is available. 
Phone: 0207 843 1900 or visit: www.councilfordisabledchildren.org.uk

Independent Panel for Special Education Advice (IPSEA) – provide free legally based advice to families who have children with special educational needs, including information and advice on the educational support available. 
Phone: 0800 018 4016 or visit: www.ipsea.org.uk  

Information, Advice and Support Services Network (IASS Network) – can help families to find their local IAS Service, who can provide information, advice and support to disabled children, young people, and their family: 
https://councilfordisabledchildren.org.uk/information-advice-and-support-services-network 

Muscular Dystrophy UK – have a guide called: ‘Inclusive Education for Children with Muscle-Wasting Conditions: A Guide for Schools and Parents’. This can be read as chapters or downloaded in full from: www.musculardystrophyuk.org/about-muscle-wasting-conditions/information-factsheets/education-guidelines/ or phone 0800 652 6352 to request a copy.

Parent Carer Forums - are groups of parents and carers of disabled children who work with local authorities, education settings, health providers and others to make sure the services they plan and deliver meet the needs of disabled children and families. In England there are parent carer forums in almost all local authority areas. A list of contact details for the different forums is available from Contact: www.contact.org.uk/what-we-do/parent-carer-participation/what-is-a-parent-carer-forum/

SENDIASS - Special Educational Needs and Disabilities Information Advice and Support Service are part of the IASS Network (see above). SENDIASS provides free impartial, confidential and accurate information, advice and support about education, health and social care for children, young people and their parents on matters relating to special educational needs and disability: https://www.kids.org.uk/sendiass

SOSSEN – the independent helpline for special educational needs: 0208 538 3731. Their website also provides tips and information sheets for parents: www.sossen.org.uk  

'Special educational needs and disability: A guide for parents and Carers' – a Government publication can be downloaded from: www.gov.uk/government/publications/send-guide-for-parents-and-carers

 

Page last updated: July 2019