Resources For Parents

These resources are designed to give you information that may be useful when your child starts asking questions about why they have SMA, what caused it and how you and the doctors know what equipment and help they need.

We have tried to give you a framework with ways of explaining things that are as accurate as possible without being too complicated, and that can be adapted in ways that work for you and your child. 

Page last updated: 5th September 2019