Support From Family & Friends
Family and friends are often a really valuable source of both practical and emotional support. For example, they might be able to help with household chores, look after other children in the family, or any pets you might have.
Some families find it helpful to take holidays or short breaks with family or friends, as additional adult support can be very helpful to entertain siblings, help share the daily tasks, and for back-up in case of an emergency.
Family and friends often comment that they feel inadequate at the time of diagnosis, not knowing how they can help. Some organise fundraising events as a practical way of showing their support. This can also be a good way to raise awareness of SMA in the local community.
Page last reviewed / updated: February 2021
Next review due: February 2022