Though nusinersen treatment and the possibility of other future treatments has brought great hope to many, the severest forms of SMA can be life threatening, due largely to respiratory challenges. Sadly, some parents will face bereavement.
We hope the information and resources in the section, For All: For Parents Facing or Experiencing Bereavement will be of some help to you.
Page last reviewed / updated: February 2021
Next review due: February 2022