Understanding The Education Support Systems In The UK

Many children’s SMA will at some point impact on their ability to access education and mean that they will need additional support. They will be considered to have ‘special educational needs’ (SEN). Depending on the impact of their SMA, some children will already have plans to support them agreed in their pre-school years, for others these needs may emerge later. Children with SMA will also have health needs which will need to be carefully managed.

Contact for Families with Disabled Children has a wealth of information on this and other education topics: 
www.contact.org.uk/advice-and-support/education-learning/ 

We are grateful to them for collating all this and acknowledge how useful it has been for writing this shorter summary that we hope pulls together key information for parents of children with SMA.

Page last updated: July 2019