Community Voices - People Share Their Stories

This page is currently under development:

Browse through for a whole range of experiences and thoughts - from teenage reflections, to being a parent who has SMA, to hearing about animal companions. Our thanks to all our contributors.

If you'd like to write for these pages, or send in a video clip or photos, please find out more here.

The pages on our website are divided into the following sections:

• Out & About and Leisure Time - sport, driving and travel to name a few of the experiences described by children, young people, adults and families: 
  www.smauk.org.uk/out-and-about-and-leisure-time
   
• Adult Reflections - living independently, working, travelling, looking back on life to date: www.smauk.org.uk/adult-reflections
   
• Further Education - college, university, degrees and PhDs; some of the choices people have made: www.smauk.org.uk/further-education
   
• Teenage Reflections - work experience, school, hobbies and life in general: www.smauk.org.uk/teenage-reflections
   
• Animal Companions - from assistance dogs to pampered pets, people share what their furry friends and animal companions mean to them, and the role they play in their lives: www.smauk.org.uk/animal-companions
   
• Parents and grandparents of children who have SMA Type 2 or 3 share their experiences around topics such as equipment, education and spinal surgery: www.smauk.org.uk/parents-grandparents-of-children-sma-type-2-or-3
   
• Having SMA and becoming a Parent - the journeys that have led to this new chapter of life: www.smauk.org.uk/having-sma-becoming-a-parent
   
• Speaking Up For SMA - adults Speak Up For SMA on issues that are important to them, such as in the media or at an information, social, or Parliamentary event: 
  www.smauk.org.uk/speaking-up-for-sma
   
• Parents whose babies were diagnosed with SMA Type 1 since 2011 and did not access drug treatments, talk about their experiences of diagnosis and care: 
  www.smauk.org.uk/parents-of-infants-with-sma-type-1
   
• Parents whose child was, or has been, diagnosed with SMARD1 talk about their experiences of getting a diagnosis and caring for their child: 
  www.smauk.org.uk/personal-experiences-smard
   
• There are also bereavement and memories pages: 
  www.smauk.org.uk/bereavement-and-memories

Page last updated: July 2019