The information in this website site aims to inform and support adults and families to have confident discussions with family and friends, members of their / their child’s medical team and the health, social care and educational professionals supporting them.

It's not a substitute for individual medical, education, health or social care advice, which should always come from relevant members of your / your child’s own team.  

The disclaimer that covers the main sections of our website covers the Living With SMA sections also. 

Page last reviewed / updated: May 2021 
Next review due: May 2022