For Support / With A Question

Though we hope Living With SMA has answered a lot of your questions, there’s nothing quite like being able to talk things through with someone. 

At SMA UK we have a small Support Services team who’ve been supporting families with children and young people who have SMA, adults who have SMA, and those who are bereaved by SMA, for many years. We do this by email, phone, text, zoom, and, when safe, outreach home-visiting anywhere in the UK; it doesn’t matter where you live. 

If you are:

  • a parent / guardian of a child who has SMA
  • an adult who has SMA
  • or are bereaved by SMA

you can phone us on 01789 267520 (Mon-Thurs, 9am-3.30pm; Friday, 9am-1pm; closed on public holidays) or contact us here

  • If you’re a young person under 18 years of age looking for support and outreach, please contact us here.

Page last reviewed / updated: May 2021
Next review due May 2022