Meeting People, Getting Involved & Campaigning

You may already know other people who have SMA – possibly have contact online or you’ve met face to face. Though they may not have lives quite like yours, you might have experiences in common that it’s good to be able to talk over and share tips and ideas about. But we know it’s not always easy to find people to be in touch with, as SMA is a rare condition.

You’ll also know that though society is much better than it was at including everyone and making sure there is access for all, we still have a long way to go. You may want to get involved with other like-minded people to talk about issues you’ve come across or heard about and you may want to join in with campaign activities.

This section includes ideas and options for how to make contact with others and get involved, if you wish:

Page last updated: July 2019